Gifts

Monday, February 22, 2010

18 hours before I find out if my 13 month old is still free from the cancer that has been looming large in my brain for the last week and I get a phone message from the doctor's office telling me they no longer accept my insurance. I have to call in the morning to verify. If it is true than this is the second pediatric oncology group to drop our plan in just 5 months. And pediatric oncologists are not exactly a dime a dozen. At least not the good ones. Arrghh. God has a plan, God has a plan, God has a plan, God has a plan.

5 comments:

DeniseFebruary 22, 2010 at 10:05 PM
That just sucks!!! They would at least give you your results wouldn't they??? Aaaaaggghhhh!!!
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KristinFebruary 22, 2010 at 10:16 PM
Oh man - like you needed one more thing to stress over! So sorry. Praying for good news.
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LaceyFebruary 22, 2010 at 10:40 PM
Oh insurance is such a joke! Praying for good results!
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HeatherFebruary 23, 2010 at 1:30 AM
So sorry.Seems so unfair when you are neck deep in life.Praying for wonderful results.
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StephanieFebruary 23, 2010 at 6:40 AM
That's just great!!!! i really can't stand insurance monsters.
Hold tight, God does have a plan. Sometimes I wish He would let us in on it.
But we're praying!!!!!
Keep us posted... Please, especially about Tomas.
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All about Tomas

When I was around 5 months pregnant an ultrasound revealed a birth defect (duodenal atresia - a blockage between the intestines and stomach) in Tomas which also meant he had a high chance of being a Down Syndrome baby. About a month before he was born I had an amnio that showed he did indeed have DS. He was born on January 16, 2009 and had his first surgery when he was 32 hours old. After that, test result after test result rolled in. In the first month my family learned he had three holes in his heart, his liver was not working, and he had Transient Myeloproliferative disorder (a type of leukemia which resolves in the first few months of life). The second month revealed laryngomalacia (a collapsing larynx), primary and secondary aspiration, and severe reflux. He was switched to tube feedings and had his second surgery to correct the reflux that was causing him to suffocate. The TMD resolved when he was 4 months old, his liver started working when he was 5 months old, and the holes in his heart have closed without intervention. After that we found out his left lung is partially collapsed, he has a stomach hernia and a liver hernia and multiple bowel hernias, and was recently diagnosed with neutropenia. He had another 2 surgeries. He is on J-tube feedings, requires oxygen support, needs to be on a pulse oximeter monitor, and has 10 specialists who follow him. He is exactly what I never knew I wanted. He has taken our family and carried all of us to a place where every smile matters, where the days breathe with possibilities, and joy reigns supreme.

Gifts

Monday, February 22, 2010

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