Monday, November 2, 2009

I realized (thanks to a friend) that I never posted when Tomas' sugery is. It will be on Thursday, he'll be staying overnight for a 23 hour obs. My husband (glass half empty) thinks we'll have a hard time getting out of there with all his desats but I'm (glass half full) hopeful that since we have O2 at home they'll let him go.

I had Olivia in for her pulmonogy follow up this morning. She is allergic to dust and mold and cats. Cats are a moderate allergy but we don't have any (and my husband says now we have the perfect excuse to never own one - not a cat person). Dust and mold are mild allergies - and it is a good thing, not too much mold around here but dust bunnies galore. Can you imagine the pressure if it was a significant allergy? I can just picture myself debating whether to dust or just give her more meds!

Last night Tomas' monitor went off and it was his heartrate not oxygen. Last week the same thing happened and his heartrate showed 34bpm. I thought it was fake because it was so low, and he really doesn't have any heart issues. But with last night's occurence I mentioned it to the Dr. this morning and she said it could be due to the reflux. If I hear one more time that is what is wrong with my son is because of reflux, I may scream. Really loud.

His surgery is on Thursday and I'm ready. There is a small room off of the main church my family goes to and there is a statue of the Pieta. I went in and knelt to say the rosary. My mind was all over the place, absolutly blank. It was definitely a time that I was most grateful for repetative prayer, I was able to make it through even though I could hardly focus. Afterwards, Mass began. The Gospel was Mt 5:1-12:

When Jesus saw the crowds, he went up the mountain,

and after he had sat down, his disciples came to him.
He began to teach them, saying:

“Blessed are the poor in spirit,
for theirs is the Kingdom of heaven.
Blessed are they who mourn,
for they will be comforted.
Blessed are the meek,
for they will inherit the land.
Blessed are they who hunger and thirst for righteousness,
for they will be satisfied.
Blessed are the merciful,
for they will be shown mercy.
Blessed are the clean of heart,
for they will see God.
Blessed are the peacemakers,
for they will be called children of God.
Blessed are they who are persecuted for the sake of righteousness,
for theirs is the Kingdom of heaven.
Blessed are you when they insult you and persecute you
and utter every kind of evil against you falsely because of me.
Rejoice and be glad,
for your reward will be great in heaven.”

The homily was all about how God doesn't call the equiped but equips the called. And how during life's trials we must unite our suffering to the cross and remember to "Be still, and know that I am God". That Psalm has been my meditation point from the day we got the results of the quad screen. To have it handed to me on a silver platter just minutes after praying before Our Lady was a beautiful reminder of how close God is holding my family right now. I do rejoice and I am glad, and I pray only this; to remember from whom all good things come, and to whom all good things return, and to give thanks for whatever time He allows me to serve that purpose.


  1. We will be praying for his surgery and being released quickly. Prayers for your family,
    Hand in Hand Prayer team at FellowshipChurch
    stephanie and chad hoskins

  2. We get our face stickies from the home health care people that deliver our oxygen tanks and cannulas. They call them "tape tender grip cannula fixation". They usually come in a big roll. We leave ours on all day even though we only use oxygen at night. They are really sticky, so they stay on for days. There is a top clear tab that isn't so sticky that peels back for the cannula tubing. When I do take them off (because the top tab gets unsticky), I use "Detachol" (it can be purchased off or local medical supply stores) and then it doesn't pull or irritate the skin.
    Praying for you guys on Thursday! (ask the hospital for a roll of face stickies - they gave us our first handful)

  3. P.S. email me your address & I can send you some face stickies to try if you want :)
    twodogfamily (at) comcast (dot) net

  4. What surgery is he having? Is it a nissen? I saw your comment on Kristens blog. I have some tender grips I can send you to try now that Jax has the trach we don't need them. I bathe Jax every other day and thats when I change them. He has such sensitive skin but these tender grips don't hurt his face at all and they come right off. Email me at and give me your address.

  5. we are praying for all today...if you need anything please do not hesitate to call!